*Just a little ‘80’s metal mood.
First of all, let me tell ya –
Don’t get sick in the Fall. Everyone you need help from is on vacation then. Just FYI.
Gawd. It’s taken way too long since the diagnosis of the cancer recurrence (Aug 25th-ish) to get a surgeon chosen, get an oncologist and to get started on the treatments. Although I was waiting a whole two weeks for appointments with the oncologists I wanted to meet due to lengthy September vacations (and who can blame them?), luck happened and late last Friday afternoon Dr. Look (my original Portland onc) called to make sure I am getting my needs met. Turns out that HE is NOT on vacation and IS available to start my treatments after an appointment the following Monday.
So today I met Dr. Look for the outlay. He says chemo will be the same treatment no matter which oncologist I opt for. He is also open to collaborating with a complimentary care physician (naturopath).
The combination therapy he described is 3-4 different drugs, Oxaliplatin, 5FU pump, Leucovorin, and I think FOLFOX, too. To infuse all of these, they will install a port, a small device set underneath the skin on my upper chest with a catheter that connects to a vein where all intravenous chemicals/fluids can go in and blood samples can be drawn as needed. I will wear a pump for two days after each infusion (talk about a ball-and-chain), then have it removed for the remainder of the two week cycles. At about 2 months, I take a break from the infusions, and have the surgery, then resume chemo after a healing period. The remaining duration of the infusions will be determined by results from CT scans.
The first treatment is likely to be the worst, and the first few days, especially, for nausea, neuropathy (tingling and cold sensitivity in extremities, mouth), some hair loss (but not necessarily all of it), diarrhea, anemia, other unpleasantness.
When will I begin:
This Wednesday they will install the port at the hospital, I will go home the same day. Wednesday night I take a class on chemotherapy (!!) – and it’s 2 hours! Ugh, I hope they make it fun, especially since it’s the same day I have the port surgery. Then the very next morning, Thursday, I get a pump hooked up and the first of the infusions at the oncology clinic. Saturday I will have it removed for the remaining two weeks until the next infusion.
I am working out a meeting with the complimentary care physician now, and will post an update on that soon.